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We got our MRI results on Friday and it was a mixed bag of good and not so good results.
As far as the cyst on his spinal cord is concerned, it has not grown any larger and is not constricting the growth of his spine. So, that's good as we don't want to see the cyst grow, nor do we want it to contrict his growth.
However, (and I'm laying it all out here...so just be warned you may not want to know some of this) he did see that Brayden is constipated and his kidneys and bladder were pretty distended, so he's concerned about how Brayden passes "waste." We have been referred to a Gastro-Intestinal (GI) Specialist and a Urologist to have his kidneys, liver, bladder, intestines, etc. checked out to see what's going on in there. This has pretty much been a problem with B since he was born. If any of you have seen his pics from birth, there are a few with him that his belly is really distended and this is from him not passing his food the right way. The good news is that we have him on a pretty steady regimen of Flax Seed Oil and Laxatives that as long as we continue to put those in his food, he will have a bowel movement everyday. The problem the Dr. wants to find out more about is to see if this is a result of the cyst on his spine and the hole in his brain not allowing for proper communication to occur between B's brain and his other organs to process his food. So, please lift this up in prayer...as we are back to praying for his bowel system (we used to pray that he would poop, as it was so hard for him, now we just need to pray for his entire system, that Jesus would set it straight).
Going forward, the concern is that B may not have control of his bowels, to include bladder control, which at his age is very tough to determine. This could lead to any number of things, from just having to maintain the laxative/flax seed regimen, to him having to wear diapers into adulthood...not fun. So, again, we will hope to see these 2 Dr's as soon as we can, and we'll update you as to how this progresses.
All in all, the Neurologist said he was pleased with the results and is hoping for good news from the GI and Urologist. He said he doesn't feel like he needs to see for another 12 months, which is a good sign. Of course, he said if we see any negative developments to get in immediately, but at this point, he thinks things are going well.
Anywho...Kelli had to go to Lubbock for work this week, so we shipped B over to Mimi and Papa's...here are a few pics of their first evening together, playing in the sprinkler!!
