David & I were extremely pleased to learn that the Baby D's doctor was eagerly awaiting our arrival and had scheduled a conference room for us to be able to visit. He updated up the background of the medical condition that had occured pre-delivery. The twins had a condition that he call Twin-Twin Transfusion. This condition is where one baby is basically taking all the nutrients and blood instead of them equally sharing. In Twin Twin Transfusion, the initial baby(host) then takes the all the nutrients and tries to pump it to the sibling. So you have a Host twin and a Recipient Twin. Becuase of this condition the babies blood supply to the brain can vary and is not contstant and when you have a dissruption of blood flow to the brain, it is in essence like having small strokes.
Through a series of Brain sonograms, made possible through the soft spot in infants skulls, they have identified two concerning area in the cortex of the brain. This "white matter" prevent communication from the brain to certain areas of the body, mostly affecting motor skills and the brain's ability to process. It is too early for any of the doctor's to be able to tell us what affect this will have later in life. The developmental milestone's that each child goes through (rolling over, sitting up, pulling up, walking, talking, reading, ect) will be very indicitive as to how his brain is affected. As the doctor expressed, the human body is very unpredictable. You can have the same sympton and each person might be affected differently. We might be looking at a slight learning dissability or we could possibly be looking at one of the three types of Cerebral Palsey. He might be severly brain damaged and require complete medical attention or he might just be hyper active. He is still so very young, he was 25 weeks premature, that how his brain develops and heals going forward has yet to be seen.
This was tough news for everyone to wrap their brains around and quite emotional! We spent some time with the baby and visited with the nurses; THEY ARE ANGLES!!! Michelle was pretty disturbed and was pretty needy with her time with the baby. David & I allowed her to have the quiet moments that she needed and then we were able to pray over his little body.
I have to admitt, I left the hospital feeling overwhelmed. Dr. Lawrence was pretty frank when he described the amount of care and attention this little baby might be needing; Occupational Thereapist, Speech Therapist; Social Workers; In-home Nurses; Nutritionists,....and the list goes on. Of course, this is WORSE CASE and we know that our God is in the business of healing. But for the rest of the afternoon, I have to say, that my conversations with God sounded more like my laundry list of how I am inadequate to mother this baby! I felt like Jonah or Moses trying to convice God that he has the wrong guy! Isn't that just like our flesh...how quickly I forget and revert back to trying to put our God in this little box and say "Oh, this is just too big for you to handle."
This morning I went back to the very first verse that David texted me with the tagline ..."I think we have our answer to this baby." Hebrews 12:12 "Therefore, strengthen your feeble arms and weak knees. Make level paths for your feet, so that the lame may not be disabled, but rather healed."
I will not be anxious. I will pray for healing and present our requests boldly to the throne of God. I will give thanks for my salvation,this little life, this journey, my husband, God's providence. I will rest in the peace that God has given us even though we don't understand what tomorrow may look like, so that our hearts and minds may be gaurded.
Friday, October 2, 2009
Call to prayer for healing
at 10:54 AM
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